9 Comments

Health comes first. I hope you find some relief.

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You take care of you first. Notes and Substack will still be here.

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Please take all the time you need to care for yourself!! We will be here when you are ready and able to return! ❤️❤️

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I’m thinking about you and sending you positive vibes Laura.

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Laura, when you talk to your neurologist about the migraines, as him about Aimovig for migraines. There are several other great therapies, but Aimovig changed my wife’s life.

Also, myobloc and Botox should be covered. I would appeal if you haven’t. We ran into the same situation and won on appeal.

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Laura—is it possible to order your medication online from Canada? I’ve read it’s sometimes much less expensive and some people have done this due to US prices. So sorry you’re going through this. Is so maddening and demoralizing.

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It's not as expensive as the states, but is still too expensive. I am not Canadian and don't have their healthcare. I would still need to pay what I don't have. Ocrevus is $160,000 a year in the U.S. Kesimpta is $67,000 a year in the U.S. in Canada, Kesimpta is $27,000 a year. Nor having Canadian Healthcare, that is still out of my reach.

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Take care of yourself first!

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I hope you feel better soon.

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